Brain Tumour Support NZ is preparing a submission to Pharmac to have the drug bevacizumab (also known as Avastin) funded for people with relapsed/recurrent high-grade glioma, including glioblastoma. If you are caring for, or have cared for, someone with a high-grade glioma who has taken, or considered taking, bevacizumab (Avastin), we would like to hear about your experiences.
The information you provide in this survey will be confidential.
No personally identifiable information will be reported in the results. Additionally, your responses are combined with those of many others and summarised in a report to further protect your anonymity. Your name and contact information is being collected for survey administration purposes only.
PRIVACY STATEMENT
We collect personal information from you, including information about your: name; contact information; location; interactions with us and reason for contacting us. We collect your personal information in order to provide information, support, guidance and advocacy. We keep your data secure and do not share it without your permission (except in rare extreme situations to avoid a person’s health or safety being endangered). You have the right to ask for a copy of any personal information we hold about you, and to ask for it to be corrected if you think it is wrong. If you’d like to ask for a copy of your information, or to have it corrected, please contact us at hi@braintumoursupport.org.nz, or 0272923337.