In This Section

Facebook Closed Groups
Facebook Community Page
Online Support Groups
First Tuesday Bereavement Group

Our support communities offer a safe online space where you can connect with others who know what you’re going through.

Whether you’re living with a brain tumour or supporting someone who is, you’ll find a welcoming community of people who have been there and understand how you feel.

You can ask questions, get support from others and share your own experiences at any time of the day or night – it’s a safe space where you can be totally open. Or you can simply read people’s stories, knowing that there are others right there with you.

We have three private Facebook groups which aim to provide a safe and supportive space for anyone affected by a brain tumour - patients, caregivers, family/whānau or friends - anyone who’s dealing day to day with the impact of a brain tumour diagnosis. There are separate groups for patients, caregivers and parents of children with brain tumours.

The groups are monitored by the Brain Tumour Support NZ team, but are primarily a peer to peer forum led by the members.

If you would like to join our online support community, please click on the appropriate button and it will take you to that Facebook group. He waka eke noa - We’re in it together

Our Facebook page provides updates on the Brain Tumour Support NZ community, including our awareness-raising campaigns, fundraising events, research developments and news from around the world. You can link to our Facebook page here.

We hold online support group meetings for patients and caregivers. There are currently five support groups which meet once a month over Zoom.

Caregivers Low Grade Tumour Group - meets on the 2nd Wednesday of each month - register for a meeting here
Survivors Low Grade Tumour Group - meets on the 2nd Thursday of each month - register for a meeting here
Caregivers High Grade Tumour Group - meets on the 3rd Wednesday of each month - register for a meeting here
Survivors High Grade Tumour Group - meets on the 3rd Thursday of each month - register for a meeting here
First Tuesday Bereavement Group - meets on the 1st Tuesday of each month - register for a meeting here

These groups offer a safe online space where you can connect with others who know what you’re going through. Whether you’re living with a brain tumour or supporting someone who is, you’ll find a welcoming community of people who have been there and understand how you feel.

You can ask questions, get support from others and share your own experiences – it’s a safe space where you can be totally open. We always advertise our upcoming support group meetings on our Facebook page and in the two closed group pages for patients and caregivers, or you can download a meeting schedule here. To register for the meetings go to our Events page. We hope to see you there!

Our online bereavement support group meets via Zoom on the first Tuesday of each month. The group offers a safe, supportive forum for people who have lost a loved one to a brain tumour to connect and support one another. The group is facilitated by our Support Coordinator and operates on a drop-in basis, so that people can come whenever they feel the need to.

Register for the First Tuesday group meetings at www.braintumoursupport.org.nz/events